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خانواده بیماران SMA این بار جلوی مجلس تجمع کردند/۳۰۰ میلیارد تومان برای ۴۰۰ بیمار نیاز است! 🔹فانا: جمعی از خانواده‌های بیماران SMA در اعتراض به عدم واردات سه داروی موثر بر درمان و کنترل این بیماری، امروز یکشنبه ۱۱ مهر ماه، مقابل مجلس تجمع کردند 🔹عضو هیات…
خانواده‌های بیماران SMA مقابل مجلس تجمع کردند

🔹فانا: امروز ۷ آذر ماه ۱۴۰۰، گروهی از خانواده‌های کودکان مبتلا به بیماری SMA با تجمع در مقابل مجلس خواستار واردات داروی این بیماران شدند

🔹خانواده‌های کودکان مبتلا به بیماری SMA با در دست داشتن پلاکاردهایی، خواستار واردات داروهای این بیماران شامل اسپینرازا، ریسدیپلام و زولژن اس‌ام‌ای به منظور تکمیل زنجیره درمانی شدند
https://www.phana.ir/fa/doc/news/39451
https://www.phana.ir/fa/doc/news/39459
@phanair



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خانواده‌های بیماران SMA مقابل مجلس تجمع کردند

🔹فانا: امروز ۷ آذر ماه ۱۴۰۰، گروهی از خانواده‌های کودکان مبتلا به بیماری SMA با تجمع در مقابل مجلس خواستار واردات داروی این بیماران شدند

🔹خانواده‌های کودکان مبتلا به بیماری SMA با در دست داشتن پلاکاردهایی، خواستار واردات داروهای این بیماران شامل اسپینرازا، ریسدیپلام و زولژن اس‌ام‌ای به منظور تکمیل زنجیره درمانی شدند
https://www.phana.ir/fa/doc/news/39451
https://www.phana.ir/fa/doc/news/39459
@phanair

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Since its launch in 2013, Telegram has grown from a simple messaging app to a broadcast network. Its user base isn’t as vast as WhatsApp’s, and its broadcast platform is a fraction the size of Twitter, but it’s nonetheless showing its use. While Telegram has been embroiled in controversy for much of its life, it has become a vital source of communication during the invasion of Ukraine. But, if all of this is new to you, let us explain, dear friends, what on Earth a Telegram is meant to be, and why you should, or should not, need to care. Additionally, investors are often instructed to deposit monies into personal bank accounts of individuals who claim to represent a legitimate entity, and/or into an unrelated corporate account. To lend credence and to lure unsuspecting victims, perpetrators usually claim that their entity and/or the investment schemes are approved by financial authorities. A Russian Telegram channel with over 700,000 followers is spreading disinformation about Russia's invasion of Ukraine under the guise of providing "objective information" and fact-checking fake news. Its influence extends beyond the platform, with major Russian publications, government officials, and journalists citing the page's posts. Official government accounts have also spread fake fact checks. An official Twitter account for the Russia diplomatic mission in Geneva shared a fake debunking video claiming without evidence that "Western and Ukrainian media are creating thousands of fake news on Russia every day." The video, which has amassed almost 30,000 views, offered a "how-to" spot misinformation. "There are several million Russians who can lift their head up from propaganda and try to look for other sources, and I'd say that most look for it on Telegram," he said.
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